Sign Up – Cavernoma Alliance UK

Join Cavernoma Alliance UK today

Founded in 2005, our aim is to provide support and information for all those affected by cavernoma including friends, family, carers and professionals.

Become a member of Cavernoma Alliance UK and join over 4,000 people from the UK and around the world.

Become a member of Cavernoma Alliance UK and join over 4000 people from the UK and around the world.

Our members include people living with cavernoma, family members and health care professionals. Membership is free.

Together we are supporting each other.
Together we are finding better treatments.
Together we will find a cure.

For more information on how we handle your information and data, please see our Privacy Policy

Problems completing the registration form? Please email helpline@cavernoma.org.uk for assistance.

About You
First Name
Last Name
Email
Password
Retype Password
Contact Details
Address 1
Address 2
Town/City
County
Post Code/ Zip code
Country
Home Phone
Mobile / contact number
Type of Member Affected person
Parent/guardian of affected child under 16
Relative of affected person
Friend/ carer of affected person
Medical practitioner
Other supporter
Affected Person or Parent/Guardian
Name of affected person
Gender of person affected Male
Female
Prefer not to say
Year of birth of person affected
Age at time of diagnosis
Location of cavernoma(s) if known.
Is the cavernoma symptomatic? Select one of the following Asymptomatic on discovery and still asymptomatic
Asymptomatic on discovery but no longer asymptomatic
Symptomatic on discovery and still symptomatic
Symptomatic on discovery but no longer symptomatic
Would prefer not to answer
Don’t know
Please select the level of disability from the following scale Prefer not to say
None – no change in lifestyle
Minor symptoms – no inteference in lifestyle
Minor disability – some restrictions but able to look after self
Moderate disability – significant restriction (unable to live a totally independent existence and requires some assistance)
Moderate to severe disability – unable to live independently
Severe disability – totally dependent and requires constant attention day and night
Additional Information
Subscribe to our mailing list
For news, information and events relating to cavernoma. We do not pass on details to any other organisations and you can unsubscribe at any time. For additional information on how we may wish to contact you, and what we do with your information please see our Privacy Policy
I would Like to volunteer for CAUK
For more information on volunteering for us, please see our volunteering page
Would you like a welcome call from us?
One of our staff or volunteers will reach out and call you using your details above to introduce you to our services and support systems. For additional information on how we may wish to contact you, and what we do with your information please see our Privacy Policy
Please can you tell us how you heard about us medical practioner
friend or family
web search
our poster
our leaflet
other
Member Story
We ask all members to write a ‘Member’s Story’ describing their experience of cavernoma (directly or indirectly). This can be as long or as short as you like.
Are you interested in taking part in cavernoma research? (Select One) No
Yes
Maybe
If yes or maybe, what type of research would you take part in? (Tick all that apply)
If yes or maybe, what type of research would you take part in? (Tick all that apply)

Cavernoma Alliance UK

Po Box 366, Watlington, Oxfordshire, OX10 1GF

Registered Charity 1114145
Scottish Charity SC048458

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Join CAUK today to gain access to our support services and free events.

CAUK does not endorse any form of management or treatment for cavernoma, nor any medication. Any individual's treatment, management or medication should be discussed with your doctor (GP, clinician) or other health-care provider.