Join Cavernoma Alliance UK today

Founded in 2005, our aim is to provide support and information for all those affected by cavernoma including friends, family, carers and professionals.

Become a member of Cavernoma Alliance UK and join over 2800 people from the UK and around the world.

Become a member of Cavernoma Alliance UK and join over 2500 people from the UK and around the world.

Our members include people living with cavernoma, family members and health care professionals. Membership is free. 

  • Together we are supporting each other.
  • Together we are finding better treatments. 
  • Together we will find a cure.

For more information on how we handle your information and data, please see our Privacy Policy

About You

Contact Details







Affected Person or Parent/Guardian

















Additional Information

For news, information and events relating to cavernoma. We do not pass on details to any other organisations and you can unsubscribe at any time. For additional information on how we may wish to contact you, and what we do with your information please see our Privacy Policy

For more information on volunteering for us, please see our volunteering page

One of our staff or volunteers will reach out and call you using your details above to introduce you to our services and support systems. For additional information on how we may wish to contact you, and what we do with your information please see our Privacy Policy







We ask all members to write a ‘Member’s Story’ describing their experience of cavernoma (directly or indirectly). This can be as long or as short as you like.